Mission Statement

At the Mid-Atlantic MRKH Foundation, we strive to unite and strengthen the MRKH community in the Mid-Atlantic region.

Our goals include promoting the emotional and physical well-being of women with MRKH in the Mid-Atlantic region, learning to embrace the identity of life with MRKH, and building ties between affected individuals, their families and medical professionals.
We accomplish our goals by setting up in-person support group meetings, events for friends and family, and medical conferences throughout the Mid-Atlantic region in the United States.
Read about an MRKHer’s testimonial from a local meeting:

“When I first received information about MRKH Mid-Atlantic  group I was surprised because in the previous year I looked up groups and found that the closest one was in Boston. I live in the D.C. area so that would be a long trip for me. I then heard about the groups first meeting in D.C. and got very excited to have the opportunity to meet other MRKH sisters. After the meeting I went home feeling relieved knowing that I am not alone. The girls were so nice and open to share there experiences.

They are truly an amazing group of girls.

 

Contact our co-founders, Laura and Meredith: midatlanticmrkh@gmail.com

What is MRKH?

MRKH stands for Mayer-Rokitansky-Kuster-Hauser syndrome.  It is named after the four physicians that first diagnosed the condition.  It is a congenital condition that affects approximately 1 in 4,500 women.  The most common symptom of MRKH is the incomplete development of the internal female reproductive tract.  This means that most women are born without the presence of a uterus, cervix, and/or vaginal canal.  Women born with MRKH will not menstruate and cannot carry their own children.  MRKH does not affect the development of the external genitalia.  However, other symptoms can include kidney problems, skeletal problems, hearing problems, and others.

Many physicians may not know about MRKH, which can make it difficult for women to get the help they need in time.  Since this is not a well known condition, it can make it difficult for MRKH patients to connect with each other and get the support they need.